Well, Max had Dialysis this morning. We gave him a small dose of sedative before we took him down, and that seemed to ease the hook up very much. He did a great job with the whole process and was even making jokes and faces for Dad at the end.
The Bad news is..The blood test show that the kidneys are still in real bad shape. The blood count numbers are dropping every day, and the kidney numbers are still rising (those need to switch directions!) The doctors still say that we have not yet reached the bottom of this HUS. I noticed today that his eyes are more yellow again. (Jaundice which could mean that his liver is still struggling. Something we have been watching) I asked the Dialysis nurse why his dialysis doesn't seem to be working as well, and she replied that it was because he was still getting sicker.
On the good side, Max and Levi had a few moments of playtime today. It was the first time they have had play interaction since Max got sick. Max got a sponge bath (always makes me feel better to be clean). And the best part of all...We went for a wagon ride. The hospital has these great big red wagons and I fixed it all up with pillows and blankets and he nearly climbed out of the bed himself to get in it! I pulled the wagon out to the playground and we looked around, then around through the gardens that they have here, and then to another part of the hospital to a fountain.
When we got back to the room, Max was asleep in under 3 minutes!
I only thought to grab the camera for pictures after we were outside. I'll try to remember to bring it with us for our next wagon ride so you can all see!
Thanks,
Shannon
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26 comments:
God is so good to give moments of delight during this diffacult time.
We are continuing to pray for your family.
Arlene
Dear Max,
May the blessing of our lord be with you and your family. As much as Heidi and I pray for you, Savannah seems to be praying twice as much! We all want you to get better and we look forward to having you back here soon.
Love,
The Storgaards
Hi Max and family!!!
Just want to let you know that I am praying for you as well. I took my 2 year old niece, Charli Kate to the park today and while we were there I thought: "boy, won't it be great when Max is out playing in the park again!" Hurry up and get better Max, we all love you!
Sam, Shannon, and Levi- Stay strong! We are all behind you 100 percent but most importantly!! So is GOD!
Love,
Renee C. (Mark and Rebecca's sister)
praying hard for you max!
Max just remember God is with you every step of the way. Keep the faith and no matter how hard it gets you will come out of this a much stronger person. We will pray for you and when you get better have your Mom and Dad bring you to Florida and you come play in the ocean and we'll send you to Disney so just email me with your progress. EMail Suzella704@aol.com Keep the faith!!!
May God be with you.
The Schweigers Plantation FL
MAX: We're praying for you here in Houston as we get ready for Hurricane Ike. I'm glad you got out in the wagon today. I bet that was fun. Hopefully you can go out again tomorrow.
Love,
The Bottomly Family
shannon and sam-
praying for your family. my kids have been praying for max. they got out old pictures tonight looking for pics of you all to be a visual reminder. they found some of max when he was a couple days old- each of them holding him. so sweet.
i remember the wagon. logan was little when he was there, but he loved the wagon rides. so glad max can find some joy in the day.
will continue to pray for the numbers to go in the right direction.
anything more i can do for you? please let me know.
kristin
kristinnoelle@comcast.net
Hiya Max, Your dad posted about you in the acoustic guitar forum so I thought I'd drop by and say hi. My name is Joe and I'm from Denver Colorado, I have 3 sons ages 9-14. We are all thinking about you here and praying for a swift recovery. You hang in there little dude!
found you on the agf, hope you are doing ok max. i'll play some tunes in your honor and keep you in my thoughts.
Max,
Our prayers are with you!!
Love,
Betsy, Matt, Aaron and Ryan
sorry, greetings from brad here in kalamazoo michigan. thats me anonymous up above there. =)
Hey Max, I love your name and you're really cute. I have 3 boys (grown now)so I know how much your family has heavy hearts. I'm praying God's amazing healing for you and that He will also just wrap His arms around all of you and that you will feel Him right there with you, cuz that's where He is. Blessings on you and I'm praying@ In Him, Nancy
We are praying for your family in the morning and in the evening. And again when one of Sam's songs comes on my ipod:) Blessings to you guys...Those who wait on the Lord shall renew their strengh!
Moreno Family
Hi Max, this is Connor Mickel.
How are you feeling? I am thinking of you tonight while I'm playing with my Bionicles. I miss playing with you. Remember when we went camping with Brandon and rode our bikes together? That was fun!
I hope you have a good day today. I will pray that you feel better.
Love, Connor
Max,
Wishing you the very best. One of your Dad's friends posted about you on a watch forum. I wish you have a swift recovery.
- Avi
We Love you guys and you are and will be in our prayers
Ken & Marsha
Max...you're one tough little kid!
Dave, from Ottawa Canada.
Hey Max
Still praying. Strength and praise are what mark your life.
You're a star!
Andy
P.S. Must get me one of those wagons!
Hey Max -- Hey pal, it's so great that you get to ride in that wagon at the hospital! You're a precious lamb of God's and He is on your side. We're all praying He'll make you feel better and get well really soon so you can get back to your "real job": Playing with your friends and enjoying life! God be with you Max, and with your family -- I'm sure he's there. Get well real soon!
An older Brother -- Bill
Good Morning Max,
How are you feeling this morning,I Hope better!! You need to get well so you can get out of that hospital and go home. And im thinkin your Mom And Dad would be a lot happer also.
Im Still tryin to figure out how to attch some photos od bears and mtn lions.
Ok Buddy have a GOOD Day!!Talk to you later.
Steve Burton
Deming NM
Max, we're all pulling for you here in West Central Ohio; all my friends from Lima, Ft. Shawnee, and Wapakoneta wish you well and send their prayers. Add 3 more pins to your map.
BikerDoc
Hi Max
You may not know me but I am a friend of Steve, your dad's friend. I know Steve through a popular watch forum I frequent.
Though I may not know what you feel, but stay positive always. Keep up the good battle spirit.
I am 24 and was diagnosed cancer (Hodgkin's Disease Stage III) about 1 year ago. Everything seem to be going great, but I must say always always stay positive.
Nothing is unbeatable as long as your mind does not beat it down.
So dear Max, smile always. Knowing that there are many people you know or you don't who loved you and are praying for you, wherever they are.
Yuyan
(Singapore)
All the best Max. Keep your heart on the guitar music you love; it will love you back for all time!
From,
Robert
Toowoomba, Queensland, Australia
Hi Max! My name is Teresa and I have a little boy just a little bit older than you, named Tad. Tad and I are praying for you and your family and we hope you start feeling better real soon.
Teresa
Sherwood Arkansas
(very, very near to Little Rock)
good morning max!
logan (he's 12) says 'good morning max. i hope your day goes well. i'm praying for you and did you know that the average human eats 10spiders in their lifetime? most while they're sleeping!! yuck, huh!'
jillian (she's 10) says 'hang on little guy. hope you feel better and get to play with levi real soon.'
patrick's in the shower, or else he would say good morning, too (>:
we love you
the carlson's
Those wagons are cool! It's too bad I'm too big to go for a ride myself.
Still praying,
Jeff (aka Djeff on AGF)
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